Over the years I have worked to help families with PFAPA kids. Our family is one of them. Please grab your resources to lessen fevers and episodes!
This is a 72 page ebook that is filled with tools and resources to help parents (or individuals) find a diagnosis for their child’s unknown medical condition. Inside of the book are two pages that contain links to downloadable spreadsheets to use as additional tools.
If you haven’t noticed, a trip to any doctor (except your specialist I hope!) can be confusing for your doctor and be frustrating for your family. Your child is so unique that doctors don’t even know what to say or do with your child. YOU are the expert when it comes to periodic fevers. If you aren’t an expert yet, you will become an expert with this book and time with your child.
You may be feeling alone, frustrated, tired and sad about your child’s condition. Me too. I feel that way all the time. Parker has had PFAPA since he was 8 months old. He is almost 9 years old now. Hope for a future without PFAPA pushes you along. Unfortunately, there is no guarantee it will happen. And depending on what periodic fever syndrome they have they may never outgrow it. This book is aimed at embracing your child’s condition. It’s about learning to live as fully and healthy as possible, even if the condition never goes away.
Even if you are unsure about what condition your child has, this book can help you. It can help you rule out PFAPA or consider it as a diagnosis. Don’t forget, no matter what condition your child has all of our children are suffering, repeatedly. We are all in this together. This book can help you connect and learn new ways to ease episodes.
What To Expect From This Book:
Our family’s story of PFAPA.
Our journey to a diagnosis.
Symptoms, diagnosis, treatment while living with a periodic fever syndrome.
Tools & resources to help you track your child’s condition.
Tips about how we try to ease episodes.
What You Won’t Find In This Book:
A diagnosis for your child’s condition.
Medical advice about how to treat your child’s condition.
No matter your stage in the PFAPA (or PFS) journey, this book will provide you with new insight on how to approach your PFAPA care. Whether it is yourself, your child, grandchild or significant other, these tools are for EVERYONE!
This book will:
• Help you get a better balance in your child’s body systems, diet, nutrition, home environment, hydration, lifestyle and stress.
• This book contains steps that we have taken with a 9-year-old PFAPA child (episodes from age 8 months) to get control over episodes.
•This book is meant to be a guide with information that you may choose to use, or choose to ignore. Let this be a reference for new things to try in your PFAPA life, and most of all, let this be a HOPE that you can find breaks and more control in your own PFAPA life.